A matching platform for patients and clinical trials
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Experiencing a spinal cord injury (SCI) is extremely distressing, both physically and mentally. Moreover, it throws people into a complex, unfamiliar world of medical procedures, terminology, and decision-making. Not knowing what exactly to look for, patients, their families and friends are desperately searching the internet for treatments and cures. On the other hand, scientists around the world are experiencing difficulties to gather participants for clinical trials.
SCI Trials Finder was invented to break these barriers. The website helps people to easily locate, understand and participate in clinical trials that fit their situation. In early 2021, a team of proven web designers and scientific experts took the challenge of developing an improved version of the page. The following remodeling process is based on user research and was driven by the goal of enhancing user experience and design.
Here are the three most important questions:
What exactly is SCI Trials Finder?
Following a barrier-free design, this website is accessible for both people with paraplegia and tetraplegia. Users indicate the time since injury as well as the level and severity. Then, all the clinical studies that they can participate in, appear. Seamless contact to trial locations is provided through a secure form. In addition, a newsletter function guarantees instant notifications about new fitting trials.
What is different to existing websites?
At SCITrialsFinder.net you will only find studies in spinal cord research. The search for it is very simple and clear. Users will be presented with summarized, serious studies in a short and understandable way. All of that is ensured by the Expert Curation Committee, a group of experienced clinical investigators, and a specialist for common language. For patients and their closest circle, this makes it easier to get an overview about appropriate trials.
What should be considered when participating in a clinical trial?
To be clear – A clinical trial is not a therapy. Participating in a study helps to reveal the potential for changes but you also need to be aware of risks. Therefore, SCI Trials Finder also features a comprehensive brochure, providing guidance through the clinical trial process for people living with spinal cord injury (SCI), their family, friends, and health care professionals.
Wings for Life has proudly initiated, led, and funded the new version of SCITrialsFinder.net. Together with ASIA (American Spinal Injury Association) and SCOPE (Spinal Cord Outcomes Partnership Endeavor), the other two main sponsors, the foundation will continue to look after the page going forward.