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New guideline for patients available

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Despite the tremendous scientific research efforts, there is still no proven treatment for spinal cord injury available. Only intensive rehabilitation training is widely accepted as state of the art. On the other hand, the world wide web is full of questionable offers for recovery. Exorbitant expensive promises of salvation are luring around the globe. In this chaotic market it is hard for patients and their loved ones to keep an overview.

What you should know about experimental treatments
A group of leading health scientists and clinicians contributed their time and expertise to create a document helping you to understand how treatments are developed and tested. As a guide through the jungle of science this document can support a person in deciding whether to join an experimental treatment or not.
“Experimental treatments for spinal cord injury: What you should know” will support you to evaluate trials. It addresses why clinical trials are needed. And why it is important to scrutinize a potential treatment not only for efficacy but also for safety. Naturally, each experimental treatment comes with a certain risk.

As a foundation based in Austria we also would like to provide the document in German. The guide can now be freely downloaded on the Wings for Life homepage. It is also available online at ICORD.

This guideline was also published in the journal Topics in Spinal Cord Injury Rehabilitation and supported by Wings for Life.

Source: Failli V, Kleitman N, Lammertse DP, Hsieh JTC, Steeves JD, Fawcett JW, Tuszynski MH, Curt A, Fehlings MG, Guest JD, Blight AR. Experimental Treatments for Spinal Cord Injury: What you Should Know. Top Spinal Cord Inj Rehabil. 2021 Spring;27(2):50-74. doi: 10.46292/sci2702-50

You can find out more on the spinal cord and the influence of its damage on the human body in our basic-information. Wings for Life Glossary gives an understanding of scientific terms.